Latinos with alzheimer's, dementia still undertreated

Alzheimer’s disease and Dementia Are Still Poorly Understood, Undertreated in Latino Communities
The Latino Journal E-News, Vol. 2, Issue 4

Miami, FL—As National Alzheimer’s Awareness Month kicks off, a leading physician expert on care giving warns that Latinos face gaps in understanding of the disease and barriers to adequate care.

“The significant cost and psychological stress of Alzheimer’s and dementia are difficult burdens for all families,” said Zoë A Lewis, M.D., “but Hispanics, in particular, face unique treatment and care giving challenges that require attention and action.”

Numerous reports show Hispanics may be at the greater risk for Alzheimer’s, while others show they are the least prepared to confront the changing dynamics in care giving. “This was a powerful call to action,” states Zoë A Lewis, M.D. Her organization, Hope through Knowledge, offers community service efforts for aging and end-of-life care. Her new Spanish book , “Espero Que Sepan: La Guía Holística para la Enfermedad de Alzheimer”, ISBN # 978-1602643765 (soft cover), Virtualbookworm Publishing (2009) $18.95, was released last month and will be on sale at the Miami International Book Fair at the South Florida Writers Association Booth, Section D November 13-15th, 2009.

As producer and host of Hospice Radio Blogtalkradio, the November 16th radio program will be dedicated to Alzheimer’s, hosting two renowned authors on Alzheimer’s disease care giving. She will focus on topics covered in the bestsellers, Elder Rage, and Communicating with Alzheimer’s.

Reni Rizzo, Community Education Coordinator from the Alzheimer's Association Southeast Florida Chapter, commented on Dr. Lewis’s efforts and her recent education activism at a community-based presentation in Homestead, Florida.
“Dr. Lewis recognized the fact that older Latinos with dementia overwhelmingly remain living in the community longer, albeit with higher levels of physical and cognitive impairment compared with their non-Latino counterparts in the area. She makes it clear from her work as an internist and hospice doctor, that she understands the needs folks face from diagnosis to terminal care. Latino caregivers care for family members with more complex health, social, and long-term-care needs than are found in mainstream families. The costs for end-of-life care when there are deficits in knowledge are going to be high. We are lucky when she turns out for one of our community events with books in hand, now thankfully in Spanish.”

Dr. Lewis is a Diplomat of the American Academy of Hospice and Palliative Medicine, internist, hospice and palliative care physician, consultant, author, speaker, Alzheimer’s disease education activist, radio show producer and host and Miami, Florida resident. She has been working with Alzheimer’s patients and their families for over fifteen years. Dr. Zoë Ann Lewis was a faculty speaker at the 2009 National Council on Aging, Aging in America conference presenting on dementia and hospice care. Her work was recognized by the NHPCO 2006 guide, ‘Caring for Persons with Alzheimer’s and other Dementias Guidelines for Hospice Providers’. She is a former Harvard Medical School Clinical Instructor of Medicine among other accomplishments. Her dedicated website,www.zoealewis.com, promotes education using the principle ‘hope through knowledge’.

Her first book, “I Hope They Know: The Essential Handbook on Alzheimer’s Disease and Care”, reached number two in online sales in its category on Amazon.com, and received favorable reviews from the National Hospice and Palliative Care Organization, Gerontological Nursing, Latin and North American Alzheimer's experts and peers in the fields of music and art therapy. The National Alzheimer’s Association Greenfield Library carries each book.

For more information: www.zoealewis.com/presskit